• Gestiny
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    • Gestiny
    • The Book
Book Synopsis (No Spoilers)
  • Gestiny
  • The Book
Book Synopsis (No Spoilers)

Every family has a gene of particular interest – whether they know it or not. Now that we have the once seemingly impossible ability to peer into the future of our individual fates, we arrive at the question of whether we want this knowledge. And if so, what we can do with it.

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Gestiny - The Family

The Carter family is blessed and cursed by the twin legacies of great wealth and a deadly genetic time bomb. They have pooled their considerable resources to fund novel research into finding a cure for the disease, putting their collective faith and futures in the hands of scientists … but is their confidence misplaced?


Emily Carter stands apart from the rest of her siblings as the only one of the five siblings known to be a carrier of the fatal gene mutation. The middle child of wealthy industrialist Eugene Carter from Billings, Montana, Emily was not inducted into the family construction and mining business like her two older brothers, Gene and Alec. Instead, she forged a stellar career in neurosurgery on the East Coast. Now 46, Emily offers up her body for various drug trials in service of the grand family endeavor – the research project working towards finding a cure for familial Amyotrophic Lateral Sclerosis, the heritable form of ALS. Though Emily is the only one of their generation identified as a carrier of the gene, they are all haunted by the knowledge that it could strike any one of them, which is why they are throwing millions at the scientists. 


But there is a problem at the heart of the research project, a problem that a senior researcher cannot ignore any longer. He decides he has to speak to Emily to tell her what he knows….


Gestiny follows this extraordinary family as they manage their material and genetic inheritances in the age of genomic discovery, each one playing against the other, to a dramatic conclusion. 

Gestiny - A Heritable Genetic Shadow

How Do Genetic Mutations Work?

Learn about the disease that is the subject of the book

Heritable ALS in the New York Times

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